You are here:  » Register 

Register

AID-Register

This is a national German project aimed to the analysis of different aspects (genetics, disease mechanisms, diagnostic markers, and therapeutic targets) of Autoinflammatory diseases. A national Registry is also available, in close collaboration with the Eurofever Project.
undefinedhttps://prst.gpoh.de/aid/ 

Eurofever Register  

The general aim of the Eurofever Registry is to collect information on the clinical presentation, outcome and response to treatment of patients affected by the major Autoinflammatory diseases.
undefinedhttp://www.printo.it/eurofever/eurofever_registry.asp

HIDS-Register Nijmegen

Hyper-IgD and periodic fever syndrome (HIDS)
Everything about this rare disorder collected on one internet site -
with pages for physicians and scientists as well as for patients, family and others interested.
undefinedhttp://www.autoinflammatie.nl/ENG/ 

INFEVERS

An updated registry of all the gene variants associated to Hereditary Autoinflammatory diseases.
undefinedhttp://fmf.igh.cnrs.fr/ISSAID/infevers

Master documentation rheumatic children and juveniles

The master documentation is a kind of "Registry" of rheumatic children and juveniles in Germany. It is now being carried out in 50 rheumatologically institutes since 1997 – an thus in all outpatient departments and medical surgeries nation-wide which treat children with rheumatic diseases.
undefinedhttp://kinder-rheumastiftung.de/

Breaking News:

Schnitzler-Syndrom (monocentric IIT)

16.04.2018  |  Cat: Studies

A new study for Schnitzler syndrome

4th Autoinflammation Masterclass 28. - 29.04.2016 in Berlin

11.04.2016  |  Cat: News

Dear Colleagues, It is a pleasure for us to cordially welcome you to the beautiful city of Berlin...

8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory Diseases

24.03.2015  |  Cat: News

30. September - 03. October 2015 in Dresden (Germany)